INCOME AND SELF-DECLARATION OF COLOR OF PEOPLE WITH SICKLE CELL ANEMIA ATTENDING THE HEMOPA FOUNDATION, STATE OF PARÁ, AMAZÔNIA: REALITY AND PERSPECTIVES
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Abstract
Sickle Cell Disease (SCD) is the most prevalent hemoglobinopathy, affecting millions of people worldwide. Sickle Cell Anemia (SCA) is one of the forms of SCD, characterized by the falcization of red blood cells, caused by the replacement of Glutamic acid by Valine. The S-hemoglobin gene arrived in Brazil through the African Diaspora, being more common among self-declared black and brown individuals. We investigated a group of people with SCA in the the Hemopa Foundation, in the State of Pará (Amazonia) in relation to family income and self-declared race/color to understand their bio-social reality. The majority (65%) receive only a monthly minimum wage (R$ 880/280 USD), and 90% stated that they were brown or black, indicating the importance of the race/color question in the health registry in Brazil. The biological characteristic of the SCA patients maintains a strong relation with their situation of social vulnerability, and is one more obstacle that compromises their quality of life.
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